LIFESTYLE

Mom Of Two Albino Boys Reveals What It's Like To Raise Them And What Makes Them Really Unique

Date November 23, 2018

Many people find albinism fascinating. It’s a genetic condition, and those affected by it lack pigment in their skin, hair, and eyes.

Albinism is uncommon but not as rare as people may think. According to the American Association for Pediatric Ophthalmology and Strabismus, the condition affects about 1 in 17,000 people.

Sadly, people with albinism are often discriminated against in some countries, especially in places where awareness of the condition is low. But there are people who are working to change that.

READ ALSO: Albino Twins Lara And Mara Are Breaking The Internet With Their Stunning Photos

Mom of two albino kids tells her story

Patricia Williams and her husband have four sons – Gage, Redd, Wolfgang, and Rockwell. The boys are just like other kids their age, but something about Redd and Rockwell stands out. The boys are albinos.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

Redd is the older one, and his mom didn’t even know he was an albino when he was born, she wrote in her story for Love What Matters. She and her husband thought he simply had very fair hair.

Then, when the boy was about 2 months old, his parents noticed something odd about his eyes – they sometimes moved uncontrollably. So they took him to the pediatrician and she said he may be an albino. Tests confirmed that the boy indeed has albinism.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

Snow-white hair and ice-blue eyes may look exciting to some people, but albinism also comes with certain health risks. Albinos are prone to nystagmus (uncontrolled eye movements), strabismus (crossed eyes), and extreme sensitivity to sunlight. Their skin is also very sensitive to sunlight, which is why they always have to wear sunscreen outdoors.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

Redd does have eye problems and can’t go out in the sun without sunscreen, but he lives a full life. His family adjusted well to his condition.

After Redd was born, Patricia and her husband decided to have more kids. When she got pregnant again, they half-expected the baby to be an albino. But their third son, Wolfgang, was born with light-brown hair and doctors confirmed he didn’t have albinism.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

When Patricia’s fourth son arrived, he stunned everyone in the room. Writing for Love What Matters, the mom recalled:

The doctor said, ‘Whoa! He has some really blonde hair.’ AND I JUST KNEW. My husband smiled and said, ‘He’s an albino.’ I squealed, my mother-in-law cried, and when we called my 91-year-old grandmother to tell her the news she cried out, ‘Oh no!’ and made us all laugh.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

Now, Redd is 5 years old and little Rockwell is just 9 months, and their parents have been dealing with lots of questions from curious strangers about the boys' hair and eyes. And while some excessive curiosity is not a problem, Redd has been teased by peers for his unusual appearance.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

Patricia wants more people to understand what albinism is and does a lot to raise awareness about the condition. She wrote:

We want to be good examples to our children on how to spread awareness about albinism in a positive light and not to be embarrassed or ashamed to discuss it. By keeping a positive, open dialect we believe this is significant in helping them understand how to be vocal and advocate their needs while navigating not only through school, but also through life.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

A post shared by Patricia Williams | MxB (@snagdip) on

READ ALSO: Meet The Gorgeous 9-Year-Old Model Who's Redefining Beauty Standards While Living With Albinism

Patricia is not alone

Giving birth to an albino baby can be a huge surprise, and Taylor Duvant, a mom from Missouri, knows exactly what Patricia feels. Taylor and her husband Chris were dumbstruck when their albino daughter Noralynn arrived. Taylor recalled:

All I could do was yell, ‘Oh!’ Our baby had hair alright, a head full of hair – white as snow.

Although the two moms don’t know each other, they have a shared goal – raising awareness about albinism and encouraging acceptance. We hope they succeed!

READ ALSO: "It Was A Shock When I Saw Her For The First Time": Mom Gave Birth To A Baby With Striking Snow-Colored Hair