"God, Just Let Me Hear Her Cry": Mom Opens Up About How Her Baby Wasn't Expected To Survive But Defied Every Odd

Date October 1, 2018

It was Alivia Kraft’s second pregnancy and it was going well. Alivia and her husband already had a son, who was healthy despite being born at 33 weeks, so the mom was not too worried. She had even picked a name for her daughter – Lillian.

Then came the time for an ultrasound at 27 weeks, and what Alivia heard after the test changed her life forever.

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The ultrasound technician looked at the baby’s heart and grew concerned. Something wasn’t right. Alivia’s doctor thought her baby might have Down syndrome and told her to come in for another ultrasound the next day.

That ultrasound lasted so long it felt like forever. After it was over, the specialist said the earth-shattering words. Alivia asked:

So, you think she has Down syndrome?

To which the doctor replied:

Oh, you’ll be lucky if it’s that. I’m thinking more along the lines of Trisomy 18 or 13.

Compared to babies born with Down syndrome, babies with Trisomy 18 are at a much higher risk of complications. According to the Trisomy 18 Foundation, the genetic defect is seen in 1 in 6,000 live births. Unfortunately, only about 1 in 10 babies born with Trisomy 18 survive past their infancy, as this genetic abnormality often causes very severe defects.

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When Alivia learned about her baby’s possible condition, she prayed for hours on end. She just wanted God to keep her baby alive. Writing for Love What Matters, the mom recalled her prayers:

Please, let her be healthy. Even if she’s not healthy, let it just be a heart defect and not Trisomy 18. God, just let me hear her cry.

Alivia already knew about her baby’s heart problems. The mom’s doctors didn’t sugarcoat it; they said the girl had a slim chance of survival. Alivia was given the option to terminate her pregnancy and refused.

Lillian was born on August 3, 2016. Oh, the joy her parents felt when they heard her cry for the first time! As expected, the baby was placed into the NICU. She spent a few weeks there before her parents were able to take her home.

Fast-forward to year 2018. Lillian is a lively and happy toddler who continues to defy all odds! Although she has a number of health problems, her mom and dad are simply grateful that she’s still with them, that their tenacious little girl keeps fighting.

Alivia documents her daughter’s journey on a quite appropriately named Facebook page, “For the Love of Lillian - Trisomy 18 Princess”.

The mom’s prayers are heard.

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