"God Will Take Care Of Me": Parents Allowed Their 4-Year-Old Daughter To Choose Between Heaven And Hospital
October 2, 2018 10:27 By Fabiosa
What to do if a child is suffering and just wants the pain to end? One family faced this question, and their decision might not sit well with many people.
4-year-old decides to die on her own terms
Michelle Moon first became worried about her daughter, Julianna Snow, when she was only 9 months old. Little Julianna couldn't sit properly, when most children begin to walk.
Doctors couldn't say if something was wrong with Julianna and though she was just a slow developer. But Michelle knew in her heart that her daughter is only going to get worse.
Around the time Julianna turned 2, she couldn't help without a walker, and doctors finally discovered she was suffering from Charcot-Marie-Tooth disease, a neurodegenerative illness. Her nerves were sending weak impulses to nerves, which affected Julianna's motor functions.
There was no cure. What started with the inability to walk, progressed into labored breathing. In addition, her chewing and swallowing muscles got too weak, so Julianna had to be fed through a tube.
Time went by, Julianna turned 4 years old and visits to the hospital had become overwhelming. Because Julianna couldn't cough and breathe properly, the mucus was setting in her lungs causing pneumonia.
Each time Julianna was in critical condition, doctors were able to save her by performing nasotracheal suctioning, an excruciating procedure for a child to endure.
Finally, doctors told the little girl's parents there's no way of treating her. She would have to go through terrible treatments, but they wouldn't let her live long.
Michelle's heart sank at the thought of her child suffering through her last moments, so she sat down with Julianna to ask her what she wants. Michelle shared their talk in her personal blog:
Michelle: Julianna, if you get sick again, do you want to go to the hospital again or stay home?
Julianna: Not the hospital.
Michelle: Even if that means that you will go to heaven if you stay home?
Little Julianna was so exhausted with by her illness, she decided she'd rather go to heaven. 4-year-old wasn't scared, because she just wanted peace:
God will take care of me. He's in my heart.
"Group hug!" was one of J's frequent commands. She said it whenever Steve and I were in the room together with her, and no matter what we were doing, we stopped and hugged. What else could be more important? What I would give for just one more...and how thankful I am that there are no regrets. #grouphug b/c #loveisasuperpower...stronger than #stupidcmt and #mamagrief. But I miss her so much. Photo by Charles Gullung
Julianna Snow lived long enough to see her 5th birthday, but it was the year she passed away. She was at peace and surrounded by her family. Julianna was finally free of the pain.
Mixed reactions on social media
This story raised a lot of debates on whether it's ethical to let a 4-year-old child make a life and death decisions.
It feels very ableist that her parents let her die. She was five. FIVE.— lily 🌌 (@lily_writes) June 25, 2016
Julianna Yuri Snow, thank you for showing all of us your amazing spirit!— believe in miracles - from an acorn grows an oak (@wirdgirl118) June 14, 2016
first reaction is to say parents were wrong but when u read the story they let their precious girl die feeling safe and— my3sons7128 (@tsciorpion) June 15, 2016
That's a tough decision to make for Evan an adult. Very sad, but likely the correct decision.— Jon Q Public (@95bravo1994) June 15, 2016
😢😢5 years old. ..i just cant imagine a child knows how to make such decisions..this is teribble.😢— Rose&mike (@RoseAnMike) June 15, 2016
Regardless of people's opinions, the most important thing is that Julianna doesn't suffer anymore, and heaven got another beautiful angel.