Silver City Limo Driver Gives Free Rides To A Girl With A Rare Genetic Disorder
May 28, 2018 12:50
8-year-old Mary Alice Tryda suffers a rare genetic condition called Ehlers-Danlos syndrome. According to the National Library of Medicine, this very rare genetic disorder affects connective tissues in skin, bones and other internal organs. Her mother, Kelly, gave some insight on the extent of Mary Alice’s condition.
The syndrome has taken her out of all the sports she loves. She was an amazing gymnast. She played basketball, she was a cheerleader, and she can’t do any of that right now. As we were working with doctors and discovering more, they said the activities weren’t safe, that if she took a hard landing, it would be really bad.