3-Year-Old Byron Has Had About A Hundred Fractures Due To A Rare Bone Disease, But He Fights On With A Smile On His Face!

Date August 21, 2018 10:44

Little Byron’s fight

At first glance, three-year-old Byron Baxter may look like an ordinary toddler. He smiles a lot and he likes to play with his younger brother. What makes Byron different from other kids is his rare genetic condition that makes his bones so brittle they may break with just a wave of his little hand.

Byron was born with osteogenesis imperfecta (OI), better known as brittle bone disease. According to his parents, the boy has already had about a hundred fractures, and he started getting them even before his birth.

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Byron has a severe form of the condition, so he and his parents have to be extra careful about everything he does to lower the risk of fractures.

Although there’s no cure for brittle bone disease, there are treatments that can improve the quality of life for those affected by it. Little Byron is getting infusions to strengthen his bones, and his parents wrote on Instagram that the treatment has been a success so far.

Although his condition comes with certain limitations, Byron always has a smile on his face! His strong character has made him a social media star with a solid following on Instagram, Facebook, and YouTube.

We hope Byron’s treatment continues to work and he will be able to live a full life!

What is brittle bone disease?

Brittle bone disease, known scientifically as osteogenesis imperfecta (OI), is a rare genetic disorder that causes very fragile bones. According to the National Institutes of Health (NIH), the condition affects about 6 or 7 per 100,000 people around the world.

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Symptoms of brittle bone disease can range in severity, depending on the type.

In mild cases, the following signs and symptoms may be present (according to WebMD):

  • little or no bone deformity;
  • number of fractures ranges from a few to many;
  • those affected usually have an average (or slightly below average) height;
  • hearing loss later in life;
  • fewer fractures after puberty.

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In severe cases, the following signs and symptoms may be present:

  • dozens to hundreds of bone fractures in a lifetime, which may first begin before birth;
  • serious bone deformity, such as a curved spine and an abnormally shaped legs and rib cage;
  • breathing problems.

Although there’s no cure for the disease, treatments can help people with OI live a better life. These may include medicines to improve bone strength, braces for weak limbs, implanted rods, physical therapy, and dental work for brittle teeth.

Byron and other kids and adults with brittle bone disease are fighting an uphill battle every day. We hope researchers will come up with better treatments to make these people’s lives better.

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