PSYCHOLOGY

Man Left Wife And 2 Kids After She Refused To Terminate Pregnancy And Birthed Baby With Rare Genetic Disease

Date March 19, 2019

Children with rare genetic diseases are considered special in all respects. You may have read about ‘Butterfly Child,’ the girl with amazing eyes, and an adult man trapped in a boy’s body. Although their lives were not easy, they were given a chance.

Man Left Wife And 2 Kids After She Refused To Terminate Pregnancy And Birthed Baby With Rare Genetic DiseaseSyda Productions / Shutterstock.com

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Modern medicine allows the identification of various deviations in the development of the child during pregnancy, leaving parents to then make the decision whether to give their little one a chance or relieve him/her of suffering. A similar story was shared by Tiffany Pasillas.

Man Left Wife And 2 Kids After She Refused To Terminate Pregnancy And Birthed Baby With Rare Genetic DiseaseWorried man sitting on chair and gazing at pregnant womanYAKOBCHUK VIACHESLAV / Shutterstock.com

Into the 20th week of pregnancy, Tiffany’s unborn daughter was diagnosed with Edward’s syndrome, also called Trisomy 18. The woman was recommended to terminate the pregnancy since the statistics were stacked against her. Tiffany's husband supported this decision. Loving his eldest daughter so much, the man couldn’t imagine how he could watch his younger one suffer without being able to help her.

Tiffany decided to go through with the pregnancy, even after considering all the possible risks. The couple's relationship began to fall apart because of this. The husband left the family shortly after the baby was born, leaving Tiffany with two young children, including seriously ill Aiyana.

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Trisomy 18 is a rare genetic disease. With a full gestational period, the baby is born tiny and weak, weighing around 4 1/2 lb. These babies often have a deformed skull and auricles and underdeveloped skeleton. In most cases, they suffer from heart diseases and enlarged vessels, low muscle tone, breathing problems, and dysfunctions in brain activity that cause mental retardation. Little patients with Edward’s syndrome rarely live up to their 2nd birthday.

In his own way, Tiffany’s husband was right: even doctors gave the baby no chances. But he could have acted differently, like another couple, whose son was diagnosed with the same syndrome. One of the dangers of this disease is that the baby can die in the womb. Nate's parents dreamed of having another son and together decided to follow through.

Knowing nothing was for certain, they rejoiced in every passing week of pregnancy and waited for a miracle. The parents wanted to spend at least a few hours with the baby to show him how much he was loved. Fortunately, the boy started breathing on his own after birth. His mom and dad continue celebrating every week of his life. The boy is behind in his physical and intellectual development, but he is loved and cared for.

It would seem that these two stories are very similar. The question is: what exactly is humanity here? Is it to relieve the baby of a life of suffering, or to give him/her a chance and hope for the better? What do you think?

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