"We're Scared For Her Future," Says Parents Of Toddler Who Is Allergic To Water, Including Her Tears
March 7, 2018 13:01 By Fabiosa
When Ivy Angerman was only a year old, she started breaking out in rashes after bath time. Her parents assumed it was the soap, so they swapped it out for a different one.
Over the next several months, her parents changed every shampoo and soap in the house, tried baths at hotels and Ivy's grandparents' house, and took her to a doctor, but nothing helped.
Finally, they found the surprising culprit — water.
18-month-old Ivy was diagnosed with a condition called aquagenic urticaria
Ivy, who is now 1 1/2 years old, suffers from a rare disease called aquagenic urticaria, which causes hives to form on the skin whenever it comes into contact with water.
According to Healthline, there is limited research on the condition and less than 100 reported cases. Ivy's mom, Brittany, told Delish that since sharing her daughter's story, she's heard from others with the condition.
However, most are older and from other countries.
Whenever Ivy touches water, her skin breaks out in itchy, painful hives and blisters
The condition affects everything from Ivy's bathtime to playtime. Just 15 seconds in water can cause extreme pain, Brittany told PEOPLE magazine, so they limit her bathtime to one or two times per week.
Ivy can't play outside when it's raining or snowing, and even her tears cause her pain. Ivy doesn't react internally when she drinks water — at least not currently. I wonder if one day her throat will start to swell up when she drinks it. It's already getting worse.
Her mom worries about what will happen when she starts going to daycare and wonders if she'll ever be able to visit places like Disney World or the beach.
Donations her family receive will be used to provide her with the best care
The Angerman family started a GoFundMe to raise money to cover medical expenses and go toward research. They're hoping to move into a new home with a well, purified water system, and central air to help Ivy's symptoms.
In the meantime, antihistamines and purified water have helped calm the reactions, though she's sadly still in pain. According to the NIH, symptoms usually disappear within an hour of contact with water. Given how many times a day people come into contact with water (bathing, washing hands, getting something to drink), though contact is difficult to prevent.
The family is trying to raise US$25,000 to help pay for Ivy's medicine as well as research that could hopefully one day cure her condition. Please keep her in your prayers.