REAL LIFE

He Lost His Voice Due To ALS! Founder Of The Ice Bucket Challenge Regains His Ability To Speak

Date April 13, 2018

The rare disease might have taken Pat Quinn's mobility and speech, but new voice AI software has given him a digital copy of his voice to let him speak again.

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The ice bucket challenge went viral in 2014

In 2013, Boston native, Pat Quinn, received a devastating diagnosis of Amyotrophic Lateral Sclerosis (ALS).

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In the summer of 2014, Pat and his friends co-founded the immensely popular Ice Bucket Challenge, which raised a record amount of donations going toward the ALS Association. The challenge is an activity involving the dumping of a bucket of ice and water over a person's head.

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It's either done by another person or self-administered to promote awareness of the disease and encourage donations for research.

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With his newfound popularity, Pat became an active advocate, speaking to audiences about the disease from his point of view. Sadly, as the disease took hold, Pat lost his ability to speak, despite all that he wanted to say.

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The magnificent people from the ALS Association’s Project Revoice recreated a usable vocabulary for Pat by cloning his voice from interviews and speeches, which he heard for the very first time.

Pat Quinn regains his voice

On 12th April 2018, the ALS Association announced it was launching “Project Revoice.”

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Under the effort, ALS patients can record their voices.

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Recently deceased physicist Stephen Hawking spoke through a digitized voice with a computer that detected slight twitches in his facial muscles and translated them into speech.

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The project’s launch featured prominent ALS patient and research advocate Pat Quinn, co-founder of the ALS Ice Bucket Challenge. Quinn lost his voice long ago—but Project Revoice recreated it for him.

Project Revoice aims to encourage all those with voice degenerative diseases to record and preserve their voices.

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A noble cause that we can get behind!

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